According to the latest numbers from the Centers for Disease Control and Prevention, the prevalence of autism spectrum disorders (ASD) in the United States are rising—with about 1 in 36 children and 1 in 45 adults being diagnosed with ASD. As more individuals navigate their world with autism, it’s important that true acceptance—not simply awareness—is at the forefront of the conversation not just during Autism Acceptance Month, but throughout the year. 

The following are three examples of how people, communities, and companies are promoting greater acceptance of individuals with ASD. 

 

Training first responders 

One in every 5 individuals with autism will interact with a police officer before they turn 21 years old. Adequately training emergency personnel to work with neurodiverse individuals is essential to creating protocols in a way that best support the needs of a person with autism. 

Recent research from Australia demonstrates that many individuals with autism report negative experiences with law enforcement as well as limited understanding of the events surrounding those experiences. 

The York-Poquoson Sheriff’s Office in Virginia began a program last April to help its deputies to better interact with people who have autism. In addition to training their staff on ASD awareness, the department provides decals to drivers as well as a form they can fill out to inform first responders that someone in the house may have autism. This has led to more positive interactions and better understanding in the community. 

Fighting misinformation online 

Although more people are turning to social media for information on ASD, new research out of Drexel University delves into the accuracy of that information. Researchers found that 41% of the autism content found on Tik Tok was inaccurate. Moreover, there was no significant difference in engagement between accurate and inaccurate or overgeneralized videos, meaning misinformation and false content is being consumed and spread widely. 

It’s important for providers and professionals to be aware of the autism-related content that is available and understand the amount of misinformation to better engage with people who may be getting much of their content from social media. By better understanding the questions that people are asking that lead them to Tik Tok for answers, clinicians can learn what information is needed and provide knowledgeable and research-based answers. 

Creating autism-friendly workplaces 

Companies are realizing the importance of creating spaces that are designed with individuals with autism in mind. Individuals with neurodiversity are important parts of the workforce and many organizations are realizing how critical it is to design office spaces that are sensory friendly. This may mean avoiding open-concept or cubicle setups or creating calm, quiet areas where employees can go when they feel overstimulated. Simple swaps—like using lamps instead of fluorescent lighting—are being made in many offices to create a more autism-friendly environment. 

 

PAR understands how important early intervention and identification are when it comes to an ASD diagnosis. Learn more about the PDD Behavior Inventory™ (PDDBI™) family of products and how it can help screen, diagnose, monitor, and intervene throughout the life span. 

 

Visit PAR Training for on-demand autism assessment information 

Looking for training on autism assessments? PAR Training offers on-demand webinars and interactive courses on your schedule. Browse our library of autism content, including:  

• A Tale of Two Cases: Navigating the Complexities of Adult Autism Assessment 
• Enhanced Autism Screening for Toddlers: Overview of Tools and Provider Support 
• Psychological Assessment Rounds Presented by PAR: A Case Highlighting Pink Flags in ASD Assessment 
• Administration, Scoring, and Interpretation of the PDDBI: The Nuts and Bolts 
• Overview of the PDD Behavior Inventory (PDDBI) Family of Products

The newest additions to the PDD Behavior Inventory (PDDBI) product family are now available. 

The PDDBI can better help you to document and evaluate change in individuals on the autism spectrum. The PDDBI is an informant-based rating scale that can be completed by parents and teachers to assess features of autism and responsiveness to intervention. 

Unlike other measures for ASD, the PDDBI was developed to assess both problem behaviors as well as appropriate social, language, and learning/memory skills. It can be used in assessment, treatment planning, and monitoring. Two new reports and a manual supplement have just been released.

PDDBI supplement provides practical insights 

The just-released PDDBI Professional Manual Supplement: Advanced Score, Multirater, and Progress Monitoring Interpretation digital supplement provides practical insight into the reasoning behind the development of the new reports as well as their application in practice. 

This new supplement provides guidance for calculation and interpretation of parent–teacher rating comparisons and tracking changes in scores over time using Reliable Change Indices. In addition, it includes guidance for advanced interpretation of the PDDBI, including interpretation of individual scores and clusters and comparisons between parent and teacher ratings. Reliable change indices are provided in order to detect significant differences (a) between raters and (b) over time.

Enhanced and updated PDDBI reports 

Updated and new reports offer clinicians additional insights to better document and evaluate change in individuals with ASD. The PDDBI Multirater and Progress Monitoring Reports are both available for no additional charge when you purchase and use a score report for each form you wish to compare. 

• The enhanced PDDBI Score Report provides a new interpretive guidance section, a revised look and feel with icons clearly indicating score ranges, and an optional items and responses section. 
• The new PDDBI Multirater Report allows you to select one parent rating and one teacher rating to get a detailed look at both sets of results, with significant differences clearly highlighted, both ratings plotted together on the profile, and an optional item and response section. 
• The new PDDBI Progress Monitoring Report allows you to compare scores from one rater for up to four administrations. Get a detailed look at progress or decline with significant differences clearly highlighted, all ratings plotted together on the profile, and an optional item and response section. Comparison tables are also included.

Using the PDDBI with TRICARE 

If you are covered by TRICARE, use of the PDDBI is mandated under the Autism Care Demonstration (ACD) benefit. Under the ACD, applied behavior analysis (ABA) providers are authorized to render services for the core symptoms of ASD. The goal of ABA therapy is to minimize challenging behaviors and improve the quality of life for the individual and their caregivers. 

Under this program, the PDDBI is used as a baseline outcome measure to help providers develop treatment plans and evaluate an individual’s change in behavior over time. The PDDBI will be readministered every six months. 

If you are a clinician who accepts TRICARE, the PDDBI is mandated for use as part of initial assessment and every six months to monitor progress. Additional age-based outcome measures that evaluate parenting stress are also required under ACD (the Parenting Stress Index, Fourth Edition Short Form [PSI-4-SF] and the Stress Index for Parents of Adolescents [SIPA]) are also available from PAR. Learn more about the requirements for TRICARE reimbursement under ACD.

April is Autism Acceptance Month, a time to not only recognize, but to open up and accept individuals with autism.  

Up until last year, this had been referred to as Autism Awareness Month. The Autism Society of America suggested by the name change to encourage people to move beyond awareness and into acceptance of those affected by autism. This change in mindset can help drive positive changes for individuals and families affected by autism.  

According to the Centers for Disease Control and Prevention, 1 in 44 children are diagnosed with autism. More than 7 million people in the U. S. are on the autism spectrum across all racial, ethnic, and socioeconomic groups. There is a growing need for first responder training and employer advocacy programs. For more information regarding these and other types of autism support, please visit the Autism Society.  

If you’re treating a child you suspect may have ASD or another developmental disorder, remember that PAR has products to assist you, such as the PDD Behavior Inventory™ (PDDBI™), the PDDBI-Screening Version, and the Behavior Rating Inventory of Executive Function, Second Edition (BRIEF2).   

There are additional free resources on the PAR Training Portal for those who specialize in assessing and treating autism or other learning disorders. Located under the Achievement/Development header, you can find a recorded webinar on how to use the PDD Behavior Inventory (PDDBI) on PARiConnect as well as an interactive course on the PDDBI family of products.  

 

In December 2019, the American Academy of Pediatrics (AAP) updated their recommendations for the screening of autism for the first time since 2007. Here is a brief summary of the new guidelines issued by the AAP.

·       All children should be screened for symptoms of autism spectrum disorder (ASD) at all visits.

·       Developmental and behavioral screenings should be performed at the 9-month, 18-month, and 30-month visits.

·       Standardized autism-specific screening tests should be performed at 18 and 24 months of age.

One of the primary reasons for the change is that children with ASD can be identified as young as toddlers. As with many conditions, early intervention is crucial and can influence outcomes.

PAR is proud to publish an instrument that can help clinicians adhere to these new guidelines. The PDD Behavior Inventory™ Screening Edition (PDDBI-SV) can be used to screen children at risk for autism spectrum disorder as young as 18 months. It can be administered in 10 minutes or less, letting you know quickly if the child is at risk.

If further evaluation is warranted, PAR’s PDDBI and the PDDBI ASD Decision Tree can also be used with children as young as 18 months of age.

The PDDBI family of products is growing! Free interactive training on how to use PDDBI products is now available on the PAR Training Portal. Whether you are a long-time user and want a greater understanding of the product or are considering purchasing for the first time, this course will give you greater insight into the assessment of autism spectrum disorder (ASD), the decisions made when developing the PDDBI, and how the different components work together. The PAR Training Portal is a free, on-demand resource available 24/7. Visit partrainingportal.com today!

 

In addition, we are pleased to announce the release of the PDDBI Parent Form in Spanish! In addition to the Spanish form, we are releasing a white paper by Amy Kovacs Giella that explains the translation process. According the U.S. Census Bureau, approximately 13% of the U.S. population primarily speaks Spanish at home. With autism diagnoses steadily rising, identification of Spanish-speaking individuals who may be at risk is vitally important. With the introduction of the PDDBI Parent Form in Spanish, this significant portion of the population can now benefit from the PDD Behavior Inventory product family for detection, diagnosis, and progress monitoring.

PAR is proud to announce we have added a white paper on how to use the Autism Spectrum Disorder Decision Tree with the PDD Behavior Inventory to our website. This supplemental resource will help readers use the products for screening and intervention planning.

Customers can find the new white paper under the Resources tab on the PDDBI page or via this direct link.

The PDDBI: Autism Spectrum Disorder Decision Tree (ASD-DT) can help clinicians navigate the challenging path of a possible autism spectrum disorder diagnosis. Using scores from the PDDBI Extended Form, the ASD-DT can help identify an ASD subgroup or a non-ASD diagnosis. The ASD-DT and the PDDBI provide a standardized measure to help clinicians work through many possibilities to provide precise intervention recommendations.

 

Let the PDDBI: Autism Spectrum Disorder Decision Tree (ASD-DT) help you find the way when navigating the challenging path of a possible autism spectrum disorder diagnosis. Using scores from the PDDBI Extended Form, the ASD-DT leads you toward a diagnostic category that can help identify an ASD subgroup or a non-ASD diagnosis. The ASD-DT and the PDDBI provide a standardized measure to help you work through many possibilities to provide precise intervention recommendations. The ASD-DT can be purchased on its own or as part of the PDDBI Comprehensive Kit. Learn more today!

 

Whether you need to screen, diagnose, or track individuals on the autism spectrum, the PDD Behavior Inventory™ (PDDBI™) family of products has what you need. The original PDDBI was developed to assess both problem behaviors as well as appropriate social, language, and learning/memory skills. The two newest supplements to the product line expand its use, making it even easier to diagnose, track, and assess autism spectrum disorder.

Now available! The PDDBI Professional Manual Supplement: Autism Spectrum Decision Tree (ASD-DT)

The ASD-DT is designed to enhance the diagnostic power of the PDDBI. Once a parent or teacher has completed the Extended Form, the ASD-DT allows you to use those scores to complete the branches of a decision tree that ultimately results in a diagnostic category. An algorithm is used to transform PDDBI scores into subgroups of ASD (Atypical ASD, Minimally Verbal ASD, or Verbal ASD) as well as non-ASD subgroups. Intervention suggestions and further recommendations are provided for all subgroups. The ASD-DT is designed to be used with individuals ages 1:6 to 12:5 years.

Now available! The PDDBI Professional Manual Supplement: Adolescent Normative Data

This new supplement extends the age range of the PDDBI normative data to age 18:5 years. Ideal for use when monitoring progress over time, this extension to the normative data can be used with both parent and teacher ratings on the PDDBI. The standardization sample includes individuals from a range of racial and ethnic backgrounds and geographic regions. The adolescent normative data are appropriate for use when either the standard or extended items are administered.

Whether you are a PDDBI user who wants to expand its use in your practice or are new the PDDBI family of products, visit www.parinc.com today to order the materials you need!

 

This weekend, PAR staff took part in Walk Now for Autism Speaks Tampa Bay. Funds raised from walks like these are earmarked for research into the cause, treatment, and possible cure for autism. In addition to walking as a team to raise community awareness for autism, we held a raffle and a silent auction the week before the walk to generate additional donations. In all, we are proud to have raised $4,015 for this great organization!

Want to get involved with Autism Speaks in your community? Here’s a list of other communities hosting local walks to raise awareness for autism.

 

Ira L. Cohen and colleagues from the New York State Institute for Basic Research in Developmental Disabilities presented their research on video tracking as a valuable way to study autism spectrum disorders (ASD) at last month’s International Meeting for Autism Research (IMFAR).

Using EthoVision XT, a video tracking software that analyzes behavior, movement, and activity, the team examined correlations between data from various ASD rating scales (including the PDD Behavior Inventory™ [PDDBI™]), and information gathered through video tracking. Researchers studied 31 children between the ages of 2 and 14 in a large room with toys on the floor and on a table. Twenty-two of the children in the study were diagnosed with an ASD. The child’s parent was seated in the corner of the room during the free play time. Data was collected on mean distance from the parent, mean time spent in different zones in the room, path complexity, and other factors.

Researchers were able to draw correlations between the tracking data and the results on the rating scales, finding that the tracking data could be used as a predictor of the scores on the rating scales. Results from this study may be a basis for creating new objective methods of assessing children with ASD as well as measuring the results of intervention.