According to the latest numbers from the Centers for Disease Control and Prevention, the prevalence of autism spectrum disorders (ASD) in the United States are rising—with about 1 in 36 children and 1 in 45 adults being diagnosed with ASD. As more individuals navigate their world with autism, it’s important that true acceptance—not simply awareness—is at the forefront of the conversation not just during Autism Acceptance Month, but throughout the year.
The following are three examples of how people, communities, and companies are promoting greater acceptance of individuals with ASD.
Training first responders
One in every 5 individuals with autism will interact with a police officer before they turn 21 years old. Adequately training emergency personnel to work with neurodiverse individuals is essential to creating protocols in a way that best support the needs of a person with autism.
Recent research from Australia demonstrates that many individuals with autism report negative experiences with law enforcement as well as limited understanding of the events surrounding those experiences.
The York-Poquoson Sheriff’s Office in Virginia began a program last April to help its deputies to better interact with people who have autism. In addition to training their staff on ASD awareness, the department provides decals to drivers as well as a form they can fill out to inform first responders that someone in the house may have autism. This has led to more positive interactions and better understanding in the community.
Fighting misinformation online
Although more people are turning to social media for information on ASD, new research out of Drexel University delves into the accuracy of that information. Researchers found that 41% of the autism content found on Tik Tok was inaccurate. Moreover, there was no significant difference in engagement between accurate and inaccurate or overgeneralized videos, meaning misinformation and false content is being consumed and spread widely.
It’s important for providers and professionals to be aware of the autism-related content that is available and understand the amount of misinformation to better engage with people who may be getting much of their content from social media. By better understanding the questions that people are asking that lead them to Tik Tok for answers, clinicians can learn what information is needed and provide knowledgeable and research-based answers.
Creating autism-friendly workplaces
Companies are realizing the importance of creating spaces that are designed with individuals with autism in mind. Individuals with neurodiversity are important parts of the workforce and many organizations are realizing how critical it is to design office spaces that are sensory friendly. This may mean avoiding open-concept or cubicle setups or creating calm, quiet areas where employees can go when they feel overstimulated. Simple swaps—like using lamps instead of fluorescent lighting—are being made in many offices to create a more autism-friendly environment.
PAR understands how important early intervention and identification are when it comes to an ASD diagnosis. Learn more about the PDD Behavior Inventory™ (PDDBI™) family of products and how it can help screen, diagnose, monitor, and intervene throughout the life span.
Visit PAR Training for on-demand autism assessment information
Looking for training on autism assessments? PAR Training offers on-demand webinars and interactive courses on your schedule. Browse our library of autism content, including:
The newest additions to the PDD Behavior Inventory (PDDBI) product family are now available.
The PDDBI can better help you to document and evaluate change in individuals on the autism spectrum. The PDDBI is an informant-based rating scale that can be completed by parents and teachers to assess features of autism and responsiveness to intervention.
Unlike other measures for ASD, the PDDBI was developed to assess both problem behaviors as well as appropriate social, language, and learning/memory skills. It can be used in assessment, treatment planning, and monitoring. Two new reports and a manual supplement have just been released.
PDDBI supplement provides practical insights
The just-released PDDBI Professional Manual Supplement: Advanced Score, Multirater, and Progress Monitoring Interpretation digital supplement provides practical insight into the reasoning behind the development of the new reports as well as their application in practice.
This new supplement provides guidance for calculation and interpretation of parent–teacher rating comparisons and tracking changes in scores over time using Reliable Change Indices. In addition, it includes guidance for advanced interpretation of the PDDBI, including interpretation of individual scores and clusters and comparisons between parent and teacher ratings. Reliable change indices are provided in order to detect significant differences (a) between raters and (b) over time.
Enhanced and updated PDDBI reports
Updated and new reports offer clinicians additional insights to better document and evaluate change in individuals with ASD. The PDDBI Multirater and Progress Monitoring Reports are both available for no additional charge when you purchase and use a score report for each form you wish to compare.
Using the PDDBI with TRICARE
If you are covered by TRICARE, use of the PDDBI is mandated under the Autism Care Demonstration (ACD) benefit. Under the ACD, applied behavior analysis (ABA) providers are authorized to render services for the core symptoms of ASD. The goal of ABA therapy is to minimize challenging behaviors and improve the quality of life for the individual and their caregivers.
Under this program, the PDDBI is used as a baseline outcome measure to help providers develop treatment plans and evaluate an individual’s change in behavior over time. The PDDBI will be readministered every six months.
If you are a clinician who accepts TRICARE, the PDDBI is mandated for use as part of initial assessment and every six months to monitor progress. Additional age-based outcome measures that evaluate parenting stress are also required under ACD (the Parenting Stress Index, Fourth Edition Short Form [PSI-4-SF] and the Stress Index for Parents of Adolescents [SIPA]) are also available from PAR. Learn more about the requirements for TRICARE reimbursement under ACD.
The prevalence of autism spectrum disorders (ASD) in the United States has risen from 1 in 125 children in 2010 to 1 in 59 children in 2020. It is more important than ever that individuals with autism, as well as their families, friends, schools, and communities receive support, services, and acceptance.
How can you participate?
Get the facts. The Autism Society of America provides a list with facts and statistics about autism.
Take action. Autism Speaks is asking those who wish to show their support to make a commitment to kindness. You may register on the website to participate in daily acts of kindness and fundraising following one of two paths: Learn with Kindness for schools or Lead with Kindness for workplaces. Each day offers a fun, interactive calendar designed to encourage acceptance, understanding, and inclusion.
Personalize the impact of autism. Read firsthand accounts on the impact autism has had on a variety of individuals. This site offers personal stories and can help individuals to truly understand the many ways autism impacts people—whether they are living with autism, are supporters and donors, or researchers. You can even filter by location to see the stories of people who live near you!
Share the message. A great library of downloadable social media images is available for your personal use here. Use #LightUpWithKindness and #KindnessCounts hashtags on your posts!
Proper identification and early intervention are critical when it comes to an ASD diagnosis. Learn more about the PDD Behavior Inventory™ (PDDBI™) family of products and how it can help screen, diagnose, monitor, and intervene throughout the life span.
The PDDBI family of products is growing! Free interactive training on how to use PDDBI products is now available on the PAR Training Portal. Whether you are a long-time user and want a greater understanding of the product or are considering purchasing for the first time, this course will give you greater insight into the assessment of autism spectrum disorder (ASD), the decisions made when developing the PDDBI, and how the different components work together. The PAR Training Portal is a free, on-demand resource available 24/7. Visit partrainingportal.com today!
In addition, we are pleased to announce the release of the PDDBI Parent Form in Spanish! In addition to the Spanish form, we are releasing a white paper by Amy Kovacs Giella that explains the translation process. According the U.S. Census Bureau, approximately 13% of the U.S. population primarily speaks Spanish at home. With autism diagnoses steadily rising, identification of Spanish-speaking individuals who may be at risk is vitally important. With the introduction of the PDDBI Parent Form in Spanish, this significant portion of the population can now benefit from the PDD Behavior Inventory product family for detection, diagnosis, and progress monitoring.
Let the PDDBI: Autism Spectrum Disorder Decision Tree (ASD-DT) help you find the way when navigating the challenging path of a possible autism spectrum disorder diagnosis. Using scores from the PDDBI Extended Form, the ASD-DT leads you toward a diagnostic category that can help identify an ASD subgroup or a non-ASD diagnosis. The ASD-DT and the PDDBI provide a standardized measure to help you work through many possibilities to provide precise intervention recommendations. The ASD-DT can be purchased on its own or as part of the PDDBI Comprehensive Kit. Learn more today!